Friday afternoon, evening, night, and Saturday morning seemed to be going very well. Drew had been given a relaxant that kind of knocked him out Friday morning after his last seizure. When that medication wore off, he was more awake and did a better job feeding. Although we didn't get a ton of sleep, the night felt like one of the best yet. That is why we were surprised that the doctor informed us that Drew had had another seizure last night (that is number 4). Apparently it wasn't as intense as the other ones.
So the great question of what causes the seizures remains a mystery. The doctor told us that if the seizures continue, in spite of the medication, then it is likely that Drew will be moved to Primary Childrens' where they have a neurologist that can do an EEG, etc. Hopefully that won't have to happen.
Since seizures in newborns are harder to spot, the doctor did say that there is a possibility that they are not seizures and could be something entirely different. But for now, there have been enough different witnesses to the same type of seizure activity, so everything seems to point that direction.
They stepped up his IV so that he is getting more nourishment -- Drew won't come close to leaving until he is fully weaned off the IV and getting all of his food from Mom. So far, it feels like it will be a long time before that happens. The doctor has called in a speech pathologist to analyze his suck (my son is not a sucker) and muscle tone. As well as aiding in the feeding, the speech pathologist may be able to confirm whether Drew's episodes really have been seizures. The other thing that Drew will get again is his sweet sunglasses. Because of his bilirubin levels, they are going to start the phototherapy again.
Sarah and I are doing well...We have now been living in the hospital for six days, but have been very well taken care of not only by friends and family (all of you), but by the hospital staff as well. I think it helps that Sarah's entire family is in the pediatric medical field, and I have a pediatrician uncle that does a lot here at LDS Hospital. It feels like everyone is watching out for us here, and that is a really good feeling. Thanks for all of the food, company, and prayers. We feel like the luckiest people on earth.
8 comments:
You guys are continually in our prayers! Keep hanging in there! You guys are such incredible people; Drew is lucky to have you as parents...
I am thinking of your sweet little family minute by minute and offering up a prayer each time. The Lord is sustaining and blessing you. I can feel it. I love you. Heidi
Wow! It is so exciting for you guys, I'm sure, to finally have your little guy here. I know it was a life-changing experience for us as well. However, we did not have to worry so much for Brady and his health as you are having to now. We will be praying for you and hoping for the best outcome possible for your family.
On a side note - You can view our blog as well for updates on us (Aaron is not the best at keeping in contact all the time either!).
Hey guys! We were so excited to hear of little Drew's arrival to the world! But so disheartened when we heard the trouble he has been having. Please know that we are thinking and praying for your sweet little guy. We love you!
Love you guys and wish I was there to visit in person. Drew is adorable. Hang in there and know we are thinking of you and praying for you lots!
Ted-my mom sent me this blog. We missed seeing you in the hospital by a day--we went home with our little Wyatt on Sat. I am thinking of you. I can't imagine how hard it is to see that little guy all hooked up. You are definitely in our prayers. He is a beautiful baby, by the way!! Love, Kate (boyer) Brown
Hey there - Carrisa showed me your blog today, what a handsome little man! You are in our prayers and we know that Heavenly Father is closely watching over you!! All our love.
The McDonalds
I didn't know you had this blog!! Little Drew is precious!! We are thinking about you guys and praying for you. We need Drew to come home healthy and strong. Love you guys. Hang in there! Jake and Joanie.
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